Beaulieu-Saucier Pharmacogenomics Center
Established in 2008, the Beaulieu-Saucier Pharmacogenomics Center is an academic organization applying the highest standards in pharmacogenomic research, dedicated to the advancement of knowledge and dissemination of discoveries related to precision medicine. With a variety of state-of-the-art instrumentation operated according to good laboratory practices, the Pharmacogenomics Center enables the integration and enhancement of valuable genomic and proteomic data into clinical studies and research projects. With its team of experienced statisticians, the Pharmacogenomics Center has generated hundreds of pieces of evidence from over 300,000 analytical results, spread over more than 150 projects in partnership with industry, government agencies and academia.
For more details, visit the website: http://www.pharmacogenomics.ca/
The COLCOT-T2D research team is pleased to collaborate with the Diabète Québec team on this project.
Diabète Québec is a non-profit organization that has been serving people living with diabetes for almost 70 years. Among the members of its Professional Council, Diabète Québec includes Dr. Rémi Rabasa-Lhoret and Dr. André Carpentier, also involved in the COLCOT-T2D project.
Diabète Québec, THE REFERENCE on diabetes in Quebec.
For more details, visit the website: https://www.diabete.qc.ca/fr/
In the COLCOT-T2D project, the research team works closely with patient partners who are part of the Center of Excellence on Patient and Public Partnership (CEPPP). The latter are involved at several levels, from the conceptualization of the protocol to the end of the project. Below are some of the CEPPP members who are collaborating on the project.
Patient coordinator, project manager
Sylvain Bédard first heard of the word transplant in 1980 when he was diagnosed with hypertrophic cardiomyopathy (HCM), a heart disease that had taken the life of his 18-year-old sister.
Sylvain fought for 20 years before finally obtaining the gift of life.
After receiving a heart transplant in 2000, he took up the challenge of climbing Mont Blanc (4,800 meters). In December 2004, he became the first heart transplant recipient in history to climb over 6,000 meters in Bolivia (Mount Sajama, 6,500 meters).
He has published and shared his story with the International Society of Heart and Lung Transplantation (ISHLT), the Canadian Cardiovascular Society (CCS), the Canadian Association for Cardiovascular Prevention and Rehabilitation (CACPR) and others.
Sylvain has faced many health problems, ranging from arrhythmia, to three pacemaker implantations, an embolism and a herniated disc… But he always does so with a smile on his face!
Head of the Partnership Lab and Manager of the Public-Patient Partnership Platform
Initially trained in basic research in the biomedical sciences in Montreal (University of Montreal) and Boston (Harvard University), she then worked in various research teams in France (Paul-Sabatier University, Toulouse) and Canada (ICM, CHUSJ, CHUM) in the fields of genetics, bioethics and in partnership with patients and the public. Geneviève also holds a master's degree in public administration (ÉNAP) where she specialized in the digital transformation of health in the public sector. She is pursuing a Ph.D in administration where she is interested in decision-making in the digital age. Geneviève is involved in various research projects such as the evaluation of the implementation of the patient partnership in various care and research contexts, the development of virtual training for family caregivers and the implementation of a research database on patient partnership.
Geneviève is involved in various research projects such as the evaluation of the implementation of the patient partnership in various care and research contexts, the development of virtual training for family caregivers and the implementation of a research database on patient partnership.
CEPPP patient partner
As a graduate student in clinical ethics at the University of Montreal, I have also accumulated a lot of knowledge through my experience as a patient. The last few years have allowed me to critically reflect on my journey in the healthcare network and services while developing a vocabulary that allows me to communicate, exchange and go beyond the traditional care relationship. I am particularly interested in patient partnership in the context of chronic disease as well as digital transformation, autonomy and recognition of experiential knowledge.